Friday, March 13, 2009

Let me see if I can explain all of this in a clear manner.

I spoke to Dr. M. She is encouraged by the clean culture from LabCorp but she's not convinced and wanted a culture process by another facility. So I drove a sample down to the UMMC lab this afternoon. When that comes back if the volume of bacteria is 50,000 or greater she will treat the infection with the appropriate IV abx for 7-14 days.

Katie's creatinine is up to 0.94 which is a bit concerning and could mean a couple of things. She doesn't think that it's completely because of dehydration. It could be, like a mentioned yesterday, a toxicity to Prograf. Dr. M also said it could be some small level of rejection. The only way to identify 1 of those as the real reason is to do a biopsy. So, if the culture is positive then after we treat it we will be doing a kidney biopsy. If it's negative then we'll be doing the biopsy sooner.

We're also seeing Dr. V sooner than we had thought. Dr. M said that he has a clear plan for how to proceed with treating these recurrent infections. We were going to see him on the 27th but they called today to move it up to the 20th.

Katie is pretty panicked about the biopsy because it's the unknown. I got some information about it today and she's going to call her camp kydnie pal to see if she has had one, and I'm going to contact another one as well. I told Dr. M that we would need to have someone from ChildLife there with her for the procedure. The sedation and prep are the same as the PICC line placement so that should be comforting for Katie but it's not.

We did get some really good news today. We got the letter and phone call from Make A Wish. Katie's wish to meet Corbin Bleu has been approved! The wish volunteer told me that she is 5th on the list of wish kids waiting to meet him. She's hopeful that Katie might get her wish in the next several months but obviously can't promise anything. This is definitely our bright spot right now.

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