Monday, May 11, 2009

Exciting news!

I'm going to start with the best news. Make a Wish called Saturday night and providing I can clear up one small remaining obstacle we will be headed to Los Angeles next week to meet Corbin Bleu for Katie's wish. He is inviting all of the kids on the list to meet him (at least 6) to LA and the visit will include lunch with him. Katie is very excited.

I've been working on medical and other obstacles this morning. The newest infection is a brand new to us bacteria and is treatable with oral abx but the one that we're on isn't a top choice so we're going to switch to a new one tomorrow. Given our impending trip, and that we're going to be doing 14 days of oral abx, we're going to have the PICC line (long term IV) removed. It will be more at least 3 weeks from now that we would need to have it put back so that's a nice long break for her and her arm. It will mean an inpatient stay if we have to get another one but we've all decided it's worth it.

Both doctors are fine with her flying and traveling so far away.

The final small obstacle is that both kids are participating in a volunteer program at the library this summer where they read to younger children (there may be more involved will find out tonight.) The orientation is tonight and then the training is supposed to be next Monday but we'll be away. If we can take care of that at another branch then we'll be all set to fly away.

This is really a blessing for Katie, she's been really struggling with everything and so we're hoping this will be a thrill and a break from our surroundings.

We're also going to try to extend our time in LA so that we can go to Disneyland and see the sights in Hollywood.

Thanks for the prayers for my new niece Kacie, she's on the mend, was moved from the ventilator to just some supplemental oxygen this morning.

1 comment:

mom said...

Wow, I would like to meet Corbin, have a great trip. Cambrie did her wish trip last Sept.

Polly