Tuesday, June 30, 2009

Nope

We didn't get from there to camp kydnie without another infection. We took in a urine culture on Friday 6/26 and found out yesterday that it is growing Staph aureus. Luckily it is sensitive to some oral meds so Katie is on penicillin. We're worried that she might have some side effects from this med that might make camp difficult and not nearly as fun, so if you're so inclined some prayers for no side effects would be great.

We are working toward a second opinion. We have contacted one of the doctors at Hopkins who helps out with the weekend camp that Katie attends each fall. Unfortunately, it is taking some time to get her records to them which is frustrating but at least the ball is rolling.

Friday, June 12, 2009

HOME!

We are home. The sensitivity came back saying that the bacteria was sensitive to an oral medication so they gave us a prescription and released her. We still haven't done anything to try to prevent the next infection so I'm going to work on pursuing a consult with another doctor. Hopefully we can get from now through Camp Kydnie without another infection!

Thursday, June 11, 2009

hi as you know I am in the hospital and so not happy and I cant go in the teen room or go anywhere other kids gather. I have to much energy and I want my dog tucker so bad I really want to just go home I so do not want a PICC I might and I might not I really want to have a extra fun summer but I do not know if the is possible.Please keep me in your prayers

Wednesday, June 10, 2009

Back in the hospital

Monday Katie started having some cramping in her bladder/urethra. Tuesday it got worse and she also had some other symptoms of the infection so I thought it best to call Dr. M's office and she wanted us to come to the hospital and be admitted since the bacteria is only sensitive to IV abx. So we had dinner out and went in through the ER last evening. Dr. M wants to wait until the results culture we sent last night to be sure we're treating the right thing. I'm not sure why she feels that way since the last one we have was from UMMS. Anyway, she's on the schedule for Friday to get a new PICC placed. They're still reserving the right to cancel that. I suppose they might cancel it if the culture comes back saying a different bacteria that could be treated orally... who knows.

Katie is pretty miserable. She was supposed to start swim lessons this coming Tuesday but that can't happen now, even if she's on oral meds we can't be sure she'd be able to swim due to potential side effects of the abx. We're trying to talk to the docs about her qualify of life with all these infections because we're obviously frustrated and Katie isn't handling things well.

I'll try to keep you posted but I'm also considering adding another author to the blog who can post for me because I hate to leave Katie to go to the computer room because Katie can't come there due to still being on contact precautions.

Saturday, June 6, 2009

Same story

That first urine culture was negative as I said but the followup one that we did at the hospital came back positive. Greater than 100,000 in growth again. It's another new bacteria which we kind of think is a good thing, at least we're really killing off the bacteria of each infection now. Dr. M doesn't want to treat this infection she just wants Katie to try to increase how much she drinks and make sure she caths when she's supposed to. We'll do another culture this coming Friday and go from there.

Monday, June 1, 2009

Only Good Stuff

First of all, we got the results from Katie's urine culture from Friday 5/29 and it came back with "no growth." Woo hoo! We're doing another one tomorrow and if that one is clean we'll really feel like we're in the clear... at least for now.

Secondly, I just have to share what happened today. I was sitting at my computer.. playing on Facebook, and a new email from David Reivers, Corbin Bleu's Dad. He wanted to know how we were doing and follow up on our Disneyland experience. We are all just so amazed at how wonderful they are. I emailed him back to tell him it was wonderful and sent a couple pictures and I congratulated Corbin on is WB series getting picked up for the fall. And gave him the above health related info on Katie. He responded immediately saying that he and Corbin are so happy for Katie and that Corbin is excited about his show, but disappointed that it won't be a show his younger fans can likely watch. They are just genuine good people!