We are admitted and we are likely here for at least a week, possibly 10 to 14 days. The medicine that Katie is on does not always stay stable in the blood so it has to be repeatedly checked and adjusted as needed.
She is still on contact precautions so she can only leave her room to go for walks for exercise. She can't go to the teen room or to any child life events.
Dr. M really wants Dr. V involved and it sounds like he wants Dr. V (as Katie's urologist) to figure out a course of action to clear these repeated infections. So far no one has heard back from Dr. V so that's not good. We know he knows she is here as Dr. M told us that and we saw his nurse practitioner here yesterday.
We're going to try to have Katie's home teacher come here to work with her so she can try to keep up and it can also serve as something else to occupy her.
We've started right back in with resident problems. They didn't get ANY of her meds to her last night from the hospital we gave them to her from our home supply. No dinner last night. It took me prodding to get her meds this morning. They wrote her for a renal low phosphorous diet which is wrong and we have to have this argument every time we're here. This time I told the senior resident that, she said "but we got it fixed" and I said "but 3 weeks from now when we're back we'll be having the same argument and it's just not acceptable anymore." Dr. M was standing right there and agreed that there was no reason for them to put her on anything but a regular diet. I'm still trying to get menus for her so she can choose her meals, I started trying to get them last night.
I need to get back to her.
Subscribe to:
Post Comments (Atom)
Posts
1 comment:
I hate all the problems you had. It is very frustrating to see what Katie and you went through.
Post a Comment