Tuesday, February 16, 2010

New year and healthier in lots of ways but...

I'm so grateful for who Katie is able to be now because of the transplant and for those reasons I try not to lament the problems that have come with it. We are still battling just about back to back bacterial urinary infections. We decided, with the medical team, not to treat them until she becomes symptomatic but that has eventually happened with the last two infections. Once she's symptomatic it stinks and of course takes longer to get better. I'm starting to think that we need to go back to treating her every time there's an overgrowth of bacteria instead of waiting until there are symptoms. Don't get me wrong, her symptoms are no where near what they could be, mostly pain and just feeling badly. I just don't know how we get out of this cycle. One of the thoughts I had way back during all the hospitalizations was to decreased her immunosuppression (IS) to try to reach a happy medium where she wouldn't reject the kidney but could fight these infections. However, that seems like it won't work. The level of one of her IS meds has been running very low, we've been increasing it to try to get it back to where they want it so it's been decreased without us trying. The other one has also been decreased twice since November so there's really nowhere to go with that one either... I just don't know what else we can or should do.

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