Tuesday, August 25, 2009

Update

Sorry for the time between posts. Katie has labs every 2 weeks now. She had them on Friday 8/21 and we got the results today. Her Prograf level of low, it's 3.3 and the goal is between 5 and 8. I'm concerned about this because of the Prograf side effects and that Prograf is actually neprho toxic and we've already been through a Prograf toxicity that caused a biopsy. The biggest visible side effect is hand tremors which Katie struggled badly with immediately after the transplant. Every time we go up a dose the tremors get worse and with school starting this will be more of an issue. We'll discuss this with Dr. M when we see her next week and it will definitely be a point of discussion with Dr. N when we see her (that's the Hopkins doc we'll be seeing at the end of September.) Katie's creatinine is 0.8 which is great! Her white blood cell count is coming down. It's not too low yet and could just be a sign that we're not dealing with any level of infection, but if it goes too low they might have to adjust her dose of CellCept, one of the other immunosuppressive drugs she's on, since that's a known side effect of it. This is all quite the balancing act. As we get further out from the transplant the Prograf goal will lower and it's already lower because she received a living related donation.

So that's where we are. School starts next week and we're all hoping for a great year for Katie with no hospitalizations.

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