Wednesday, July 29, 2009

Still doing well

Katie had another set of labs with urine culture on 7/24 and that culture result was no growth. It was at LabCorp and we know their threshhold is different than the lab at UMMS but it's still good.

Her Prograf level is giving us a bit of a problem so we're upping her dose and redoing labs this week again.

The orthopod said that he felt her back pain wasn't a result of scoliosis or kyphosis and that both are out of the treatment eligible range. He feels that her muscles are week and tight from lack of use from being sick and sedate for so long. He prescribed physical therapy. She had her first appointment yesterday and the physical therapist came to the same conclusions without knowing exactly which muscle groups the orthopod had named so that was comforting. Katie has exercises to do and will be going to therapy a couple of times a week for a month or so then we will reassess.

We stopped by the middle school today to give the nurse Katie's new PE restrictions which are tremendously lightened compared to her return to school last year, and much better than "no PE" which is where we were before the transplant.

No comments: