Yesterday I called in and found out that Katie's urine culture from 4/21 was positive for alpha haemolytic streplococcus. We were to wait until our appointment with Dr. V today to discuss treatment and other plans going forward. This bacteria is similar in some way (that we don't clearly understand), we're treating with the same med as before, tigecycline, so we're back on that through 5/8 which I think is 14 days. They have also asked that we use a Foley catheter (one that can be left in place, you inflate a balloon to keep it from coming out) draining to a leg bag overnight. This of course is a very disturbing idea for Katie and of course I don't blame her, it's going to stink. We had just made some progress on her sleep issues and I'm sure this will set us back.
It's still a tough road.
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3 comments:
I have just stumbled on your very informative and detailed blog about your daughter's transplant. I am in the process of getting live donors tested. I am not on dialysis yet and my creatine is at 3.1-3.5 and BUN hovers in the upper 40's. I get new blood results next week. My kidneys have failed because of an autoimmune disease called Sjogrens Syndrome. It is similar to Lupus or MS.
I am inspired by Katie. If she can do this....so can I! I am 37 and have two little boys ages 4 & 3. I didn't know I had problems until 4 years ago. I still am reading from the beginning of your blog in 2008. I blog about what I am going through for others to learn and to help ease fears. Your blog has brought me comfort. Thanks!
Ok, I have read through your whole blog and I see that it truly has been a long road for you and Katie. Many prayers are being sent your way and I hope she starts feeling better soon. It just breaks my heart everything she has to endure, but I can see she has a very loving and strong support system.
Thanks Vicky! I'm glad you found us and were able to find some comfort and get some information. I'm off to find your other comments so I can respond to individual questions. Feel free to ask anything.
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