Katie had blood drawn on Monday (7/28) and we were to call today for the results and to see when we need to have blood drawn again. The good news is that her creatinine went down to 4.45, that's awesome! She wants the labs drawn again in 2 weeks. Katie will be glad to hear that she doesn't have to get it drawn again next week.
I also asked Nancy (coordinator from the peds nephrology side) how long the dental clearance for is good for since Katie already has a dentist appointment set up for 8/9 and she said it's good for a year so she's faxing that to Steve and that will be one big check mark on the list of things that need to get done.
Finally, right before I spoke to Nancy the transplant services secretary called and asked all kinds of questions that that hospital already knows, and that frustrates me. She wanted Katie's DOB, insurance information, height, weight, race, etc. It's frustrating to me that they don't seem to have access to her complicated medical history. So the most recent addition to the list of questions for 8/11 is "How will there be continuity of care when your data system doesn't seem to be connected to that of her other specialists even though you are all in the same facility?"
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This blog will be a place to keep our friends and family updated on our progress towards Katie's kidney transplant.
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5 comments:
Just a question....
Hopefully you or Steve will qualify as a donor, but if not will they begin testing others who might want to be a living donor?
Yes, we have a list and an order in mind. On the 11th we will receive packets to give to others on the list, and when either one of us is excluded we will "give the high sign" to the next person and ask that they get their blood drawn for the first round of their testing. They do ask that anyone who can please have their testing done at UMMS but if not there will be information in the packet on what to do.
my creatninine going down is really exiting if it keeps going down we might postpone the transplant.
well katie this might cheer you up!
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light saber
(Y)
(0_0)
(")(")
a bunny
(even more any way)
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